Life Care Planning Research Resource List

Note: Any reference to organizations, products, or services below does not constitute or imply the endorsement, recommendation or favoring of IARP or IALCP.  This is not a comprehensive list of resources.

Table of Contents

Architectural Renovations

Assistive Technology

  • AbleNet:
  • Amazon Echo; iPad and disability apps
  • iPad and learning/communication apps
  • Tobii Dynavox:

Case Management/Care Coordination/Advocacy

Charges - Facility

Charges - Physician

  • CMS Physician Fee Schedule
  • Context 4 Healthcare: (subscription)
  • FAIR Health license: See IARP life care planning section website for licensing information
  • Medical Fees Directory by PMIC
  • Physicians’ Fee and Coding Guide:
  • Physicians Fee Reference Book


Exercise and Therapy Equipment

Facility Care

General Resources

Home Healthcare

Hospital/Health System Pricing Information - Publicly Available Master Charge Lists & Price Estimate Tools

Note: Not an exhaustive list. Google “[Hospital name] master charge list” for more

Household Services

Life Care Planning Certification Agencies

  • International Commission on Health Care Certification (ICHCC):
  • Certified Nurse Life Care Planner (CNLCP):

Life Care Planning Training Programs

Medical Equipment

Medication Costs





Vocational Resources

Wheelchairs/Mobility Devices/Accessories

Resources for Specific Disability


Arias, Elizabeth and Xu, Jiaquan. “United States Life Tables”. CDC National Vital Statistics Reports. June 24, 2019; Volume 68(7): 1 – 65.

Drnach, M., PT, DPT, MBA, PCS, “The Clinical Practice of Pediatric Physical Therapy: From the NICU to Independent Living”. Lippincott Williams & Wilkins. 2008.

Delitto, Anthony, et al. “Low Back Pain: Clinical Practice Guidelines Linked to the International Classification of Functioning Disability, and Health from the Orthopedic Section of the American Physical Therapy Association”. Journal of Orthopedic Sports Physical Therapy. 2012; Volume 42(4): A1 – A57.

Haak, Peterson; Lenski, Madelein; Hidecker, Mary Jo Cooley; Li, Min; and Paneth Nigel. “Cerebral palsy and aging”. Developmental Medicine and Child Neurology. 2009; Volume 51(4): 16 – 23.

Hosack, Kenny.  (November 2014). Spinal Cord Injury Re-evaluation and Follow-up Care.  Craig Hospital.

Journal of Life Care Planning. life care

Marini, Irmo; Vang, Chia; Antol, Danielle Leigh; Mora, Elaine M.; Quijano, Paola; Pinon, Rigel Macarena; and, Cuevas, Sergio. “Redux: Empirical Validation of Medical Equipment Replacement Schedules in Life Care Plans”. Journal of Life Care Planning. 2019; Volume 17(2): 5 – 17.

Novak, Iona; Smithers-Sheedy, Haley; and, Morgan, Cathy. “Predicting equipment needs of children with cerebral palsy using the Gross Motor Function Classification System: a cross-sectional study”. Disability and Rehabilitation: Assistive Technology”. 2012: Volume 7(1): 30 – 36.

Rehabilitation Professional. journal

Riddick-Grisham, S. & Deming, L. M. (Eds.). (2011).  Pediatric Life Care Planning and Case Management.  2nd ed. Boca Raton, FL: CRC Press.

Shore, Benjamin; Spence, David; and Graham, HK. “The role for hip surveillance in children with cerebral palsy”. Current Reviews in Musculoskeletal Medicine. 2012; Volume 5(2): 126 – 134.

U.S. Department of Education, Office of Special Education and Rehabilitative Services, A Transition Guide to Postsecondary Education and Employment for Students and Youth with Disabilities, Washington, D.C., 2017.

Waltham, MA Featured Guides in “Special Needs Care for Adult Children: Cost of Care”.,, July 2017.

Weed, R. & Berens, D. (Eds.). (2019).  Life Care Planning and Case Management Handbook (4th ed.). Abingdon, UK: Routledge Press.

Wynter, M; Gibson, N; Kentish, M; Love, S; Thomason, P; and, Graham, H. Kerr. “The consensus statement on Hip Surveillance for Children with Cerebral Palsy: Australian Standards of Care”. Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach. 2011: 183 – 195.